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BlueDn13
New User
Joined: 21 Nov 2008
Posts: 1
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 Posted: Fri Nov 21, 2008 3:42 pm Post subject: i need information on xeroderma pigmentosum |
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Hey, my name is sophia and I read a book by lurlene mcdaniel and one of the characters in her book had XP and I thought it would be really good to do a report on but i am having trouble finding information about lifestyles of people with XP and personal feelings about it, and how people actually deal wth it. I would really apprecite it if any one is willing to give me some information or just talk to me about xeroderma pigmentosum my aol messenger is BlueDn13 thanks  |
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c17kmj
Site Founder & Admin
Joined: 01 Jan 1970
Posts: 258
Location: Lancashire, UK
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| Posted: Sat Nov 22, 2008 11:20 pm Post subject: |
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Have you visited our links section.
There are links to the various XP charities and support groups globally. Their websites might be able to provide some of the answers you are after.
_________________
Kevin
No signature, I've gone chip and pin! |
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Cathy (london)
Power poster
Joined: 03 Mar 2006
Posts: 137
Location: Uk
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| Posted: Sun Nov 23, 2008 5:30 pm Post subject: Sophia |
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| Hi I have a son who has XP but wondered before giving you information if you could give us more information on who your report is for and how you would be using the information we give you. Thanks Cathy |
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